
Steve Barr of SGB Media Group discusses his personal experiences as the full-time caregiver for his elderly and infirm parents and reports on many available resources for family caregivers. Information provided on the site is meant to complement and not replace any advice or information from a health professionals.
Tuesday, January 22, 2013
Tuesday, October 23, 2012
Posted on Record For Pop
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ROCHESTER, NY - NOVEMBER 3: The Eastman Kodak Co. corporate headquarters is seen November 3, 2011, in Rochester, New York. Kodak announced a loss of $222 million in the third quarter and has warned it's survival hangs on the sale of digital-imaging patents or raising money by selling debts. (Image credit: Getty Images via @daylife) |
As posted on the wall of the Eastman Kodak Company: "My father worked for Kodak for 36 years and authored over 200 US Patents during that time which he sold to the company for $1.00 with the understanding that he would get compensated for his efforts in the form of medical and retirement benefits and you bastards dare give yourselves huge bonuses then cut the medical and retirement benefits from his wife of 69 years, my mother? Shame on you and start running you pricks!"
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Friday, September 28, 2012
Just now able to return 18 months almost since he passed....
Just a bookmark to mark the first time I've been able to return here...I now am able to go about a week at a time without thinking of him...but then I feel guilty as if I have abandoned his memory or whatever BS I run through my own head...I miss my Pop....and I'm tearing up so that's enough for today.
Tuesday, October 11, 2011
It’s time for a new solution. It’s time for Caregiver Village.
The societal problem:
Despite millions of government dollars and hundreds of dedicated websites, family caregivers are in trouble. With over 60 million family caregivers in the U.S. alone, many caregivers become sick (with nearly twice the rate of chronic illnesses as their non-caregiving peers); they’re depressed (40-70% report significant feelings of depression), they face a significantly increased risk of stroke, and they’re frustrated, unable to find resources or solutions they need to help with the enormous burden thrust upon them. They’re also costly to our economy accounting for an estimated $33.6 billion in lost productivity.
The caregiver’s problem:
Family caregivers are exhausted, stressed to the point of illness and frustrated by their isolation.Caregiver Village’s virtual village creates a close knit community where caregivers can discover a sense of deep personal satisfaction – and escape – from the hard, intense work of family caregiving; while simultaneously learning how to handle their stress and building online connections with people in exactly the same situation as them.
It’s time for a new solution. It’s time for Caregiver Village.
An escape from worries; an innovative way to gain new skills.Games and episodic TV works because they provide escape. Caregiver Village engages caregivers for hours as they play an episodic game while they engage and learn. They return to play the next episode deepening their engagement and learning.
- Real support and connections. Caregivers need support. Caregiver Village creates an online ‘village’ environment where caregivers engage for hours as they interact with others while they and learn and escape. People connect based on common needs and interests in a place that becomes their own village of support and encouragement.
- The power of sharing. Caregivers need to share their story with others. Caregiver Village gives caregivers a means to share their story through the creation of an online journal, guided by supportive experts and well know real life authors. These authors host discussion groups and interact with village members. They help them share their own stories and they discuss topics of community interest.
- A treasure trove of resources. While Caregiver Village is an escape and outlet for stress, it is also packed full of valuable resources for caregivers. Over 1,000 resources, including courses, tip sheets, caregiving products and hundreds of links to disease specific resources are personalized to their needs.
- Advanced technology. Caregiver Village is not just a website. It is a technologically advanced product that uses the most modern technologies available - mobile technology, gamification, social networking, social media, web based course delivery and other advanced technologies - to solve one of the country’s most desperate problems.
Play the Caregiver Village Game. Change your Life.
It’s time to change this description of the family caregiver.
Caregiver Village is built around solid concepts of game success: key design concepts that make games, especially web games with virtual communities, engaging and rewarding to billions of people today, including women (who compose about 40% of all gamers) and older adults (one out of four gamers today is over 50).
- It’s a game – its fun. Games work because they’re fun. They’re fun because they require focus and effort and result in achievements that are specific and tangible. The Village Chronicles virtual game is built to be fun. It requires focus, it takes effort to solve the puzzles (and the ultimate mystery of the story that continues episode to episode), and achievements are earned along the way. It’s a uniquely powerful way for family caregivers to learn better self-care, stress management skills and positive attitudes about their caregiving work.
- It builds community. Linking with other people helps us understand and achieve things we couldn’t possibly realize alone, in a way that fills a deep human need for connection and companionship. In Caregiver Village, neighbors help each other by providing advice, recommending resources and offering crucial words of encouragement and support. Groups – called “book clubs” in Village terms – are led by experts who can help guide, coach and nurture the strength of the individual and the group. It’s just more fun to be a part of a team.
- It facilitates sharing and affirms choice. In Caregiver Village neighbors use a time-tested technique of journaling their experience to reinforce the “choice” aspect of their work. It’s a way to express emotions, process difficult experiences and gain deeper understanding into the complex and challenging life of a caregiver, arriving at a re-affirmation of the choice involved in their work. Caregiver Village neighbors may choose to display this choice, too, in the form of a badge that proclaims, “I’m a Proud Family Caregiver – my time, my choice, my gift.”
- It’s loaded with tools. Mastering really challenging games often means acquiring an array of tools to help you succeed. For caregivers, tools can help them succeed, as well. Tools provided in Caregiver Village include information about books, organizations, products and services that can offer tangible support. It includes exclusive Caregiver Village tip sheets and online training courses that offer tricks and tips from the experts who have mastered the “game” of caregiving.
- Family caregivers provide well over 90% of all caregiving services in the U.S. today. It’s time to break the pattern of stress, sickness, despair and dysfunction that represents family caregiving today. It’s time, with Caregiver Village, to change the lives of family caregivers.
Join Caregiver Village and be a part of something BIG!
Wednesday, May 11, 2011
Thank You!
On behalf of the family I'd like to thank those folks who have sent condolences and or attended Pop's memorial service this past weekend. Your kind words and support really helped us all get through this loss. I'd also like to say I tried my best to deliver a proper eulogy on Saturday but as those of you who were there saw my emotions got the best of me and I couldn't get through my prepared eulogy so I will type it up and post it as the closing entry on my blog, A Caregiver's Silence which you can read here:
http://www.caregiverssilence.blogspot.com
Again, for all of the family I say thank you and love you all!
http://www.caregiverssilence.blogspot.com
Again, for all of the family I say thank you and love you all!
Sunday, April 17, 2011
I Dedicate this song to Pop on his Journey
Fearless by Pink Floyd
You say the hill's too steep to climb
Climb it.
You say you'd like to see me try
Climbing.
You pick the place and I'll choose the time
And I'll climb
That hill in my own way.
Just wait a while for the right day.
And as I rise above the tree lines and the clouds
I look down, hearing the sound of the things you've said today.
Fearlessly the idiot faced the crowd
Smiling.
Merciless the magistrate turns 'round
Frowning.
And who's the fool who wears the crown?
No Doubt,
in your own way
And every day is the right day
And as you rise above the fear-lines in his brow
You look down, hearing the sound of the faces in the crowd
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